 |
Face IS (FACEIS) was founded by Emily Kather in 2010. Emily's son, Ben, was diagnosed with infantile spasms (IS) in August of 2009. Like many parents who've faced IS, Emily encountered many hurdles in the pursuit of finding reliable, expert information and care surrounding her son's condition. Out of her, FACEIS was born. To deliver the expert, vetted information and resources that parents and medical professionals need, FACEIS will utilize a physician advisory board, a corporate advisory board and a parent advisory board. This approach, including parents and medical professionals alike, will serve to meaningfully guide the information contained within the site. In addition, important updates on treatment options, advances in research and programs available for funding medication costs will be provided. The site will offer access to a carefully moderated web forum that will serve to introduce parents to other families and to open up dialog about IS and their experiences in a neutral setting. Testimonials and video of spasms from a variety of children with varying IS conditions will serve to inform families on what they may expect on their journey from diagnosis to treatment to recovery. Lastly, through community level and online fundraising events, FACEIS will support and help fund critical research into understanding the causes and further treatments for Infantile Spasms. Thanks for visiting FACEIS.org, through this site we hope no parent will feel left in the dark when it comes to getting their child appropriate treatment, which will result in more positive outcomes for children with IS and childhood epilepsy. |
 |